Pray for Ariana...

Discussion in 'Prayer Request Forum' started by DizneeTeachR, Mar 31, 2016.

  1. DizneeTeachR

    DizneeTeachR Virtuoso

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    Mar 31, 2016

    I am asking for everyone to PRAY for Ariana... she is a friend of Tiger Sam's. He called her Elsa before she started her treatment because she had long blonde hair!!! She has some scans coming up on April 4th. We know the POWER of prayer!!! THANKS!!!

    "You HAVE to Let Go, and Let God.... Some days I am so overcome with fear of what's to come...I have moments of complete peace, and I soak those in.

    Scans are approaching quickly. Monday, April 4, we will find out if our spot is stable, has grown, is gone, or if there is anything new. Whatever happens will determine a lot, but no matter what, we have God to lean on. We find peace in that. We will have a hearing test and several other tests while we are there as well.

    Please pray boldly for clear scans & great results! We want it more than anything in the world!
    God bless you all. Thanks for loving our girl!" ~ from Ariana's Go Fund me account

    https://m.facebook.com/Prayers-For-Ariana-Farragut-785873211449421/
     
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  3. Obadiah

    Obadiah Groupie

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    I will definitely be praying for Ariana. I've been praying for a decrease in childhood cancer, also. There seems to be many incidents.
     
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  4. DizneeTeachR

    DizneeTeachR Virtuoso

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  5. DizneeTeachR

    DizneeTeachR Virtuoso

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    Bumping....
     
  6. DizneeTeachR

    DizneeTeachR Virtuoso

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  7. ChristyF

    ChristyF Moderator

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    Prying for that sweet girl and her family.
     
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  8. DizneeTeachR

    DizneeTeachR Virtuoso

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    I thought I would copy Ariana's mom's post....

    "Well, Ariana woke up hungry, loopy, and pretty much out of it, but she's up and ready to eat! They had to stick her twice for the LP, so her back is hurting her, and she's not very happy...

    Thank you ALL for the prayers. God is truly listening. Our spot has not grown. Amen amen! Dr B said if anything it is a tiny bit smaller. Amen!! We don't have the final report, but we will get it tomor!

    What does this mean? It could be tumor that is shrinking; it could be something else. We don't know. The only way to know is a very dangerous biopsy that we aren't going to do just yet.

    We did not get our lumbar puncture results, but we will get it tomor along with the final report. We feel good that her spinal fluid will be clear. We are praising God that whatever it is is "stable." Thank you all for continuing to pray! Ari and I will be here til Thurs. She has several tests to do, but we are so so happy and feel relieved that we got these results. #TeamAriana
    #NEGU"
     
  9. Obadiah

    Obadiah Groupie

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    Praise the Lord! I'm still praying!
     
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  10. kavipriya

    kavipriya New Member

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    Praying for that girl. She will be alright soon.
     
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  11. The_best_teacher

    The_best_teacher Rookie

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    I'm praying for Ariana and hope she will beat the disease! Let the God be merciful to her and her family!
     
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  12. DizneeTeachR

    DizneeTeachR Virtuoso

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    Please visit her Facebook page!! Support those that battle brain cancer...she is asking everyone to turn your avatar gray or use the one like mine that Ariana's mom posted!!
     
    Last edited: May 1, 2016
  13. DizneeTeachR

    DizneeTeachR Virtuoso

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    Bumping... Prayers needed for Arianna...
    From her mom....
    "Our first appointment is Wednesday at 7. Sedation is set for 9AM with scans at 10:15. Hopefully everything will be on time, and Ariana will not be NPO too late. It's harder to keep her from eating the older she gets! Also, I ask that you pray for her lumbar puncture. The last 3 she has had have been awful, and she is in pain for days afterward. We have a few follow up appointments on Thurs, and then we will be home on Fri. if God says the same. Thank you for always praying with us, and thank you for loving our girl! #NEGU #TeamAriana"
     
  14. DizneeTeachR

    DizneeTeachR Virtuoso

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    Bumping... big day today. Keep this family in your thoughts & prayers today.
     
  15. swansong1

    swansong1 Virtuoso

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    I may not comment much, but every time a plea like this pops up here, I keep those families in my thoughts.
     
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  16. DizneeTeachR

    DizneeTeachR Virtuoso

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    Thank You. I know her mom appreciates it. I do not know them personally... our family has sent Ariana a small gift. I do text mom to let her know I have asked you all for prayers! She is also so grateful!!! Thanks again!!
     
  17. Obadiah

    Obadiah Groupie

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    I've been praying daily.
     
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  18. DizneeTeachR

    DizneeTeachR Virtuoso

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    Thanks!!!
     
  19. DizneeTeachR

    DizneeTeachR Virtuoso

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    From Ari's mom...

    Update 146
    4 hours ago
    Well guys, our prayers have been answered for the most part. We have not received lumbar puncture results on cells in the spinal fluid, but we should get those tomor! We have a few more appointments tomor with neurology and psychology!

    However, we received preliminary results for the brain and spine MRI, and they were great! Our "spot" is still there, but it has NOT grown! We will take it! Thank you Jesus, and thank you Sooo much to our prayer warriors. God is SO VERY GOOD! This momma might sleep tonight!! Amen amen amen!!! Love you all! I will update as soon as I know anything else! On another note, we have a dear friend who is not doing so well, and his parents are going through the unimaginable right now. I won't say any names, but GOD knows, so please pray for comfort and strength for them and for our sweet friend not to suffer! #TeamAriana #NEGU
    #CancerSucks #PreSchoolHereWeCome!!

    From me thanks for always taking a minute to pray for these little warriors!!!
     
  20. queldorei

    queldorei Rookie

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    Aug 22, 2016

    This is an update on my son. We got a preliminary report from the radiologist. It still shows that he has hydrocephaly but there has been a significant decress since his last CT scan 1 yr ago. Thanks for all the prayers and please continue to pray for me and both my sons.
    Let me tell you about the awsome power of prayer. While I was pregnant with my son they found out he had this hydrocephaly 2 months before I had him. We have some great prayer warriors in my church. We got the word out that their were problems with Luke and that when he is born he would have to have shunts and surgeries. Well come delivery day NICU was standing by to take Luke away but after further examination LUke was born with a normal size head. They did an ultrasound on him and the vesicles in his head had miraclously SP? improved. Now this is my miracle baby if ever there was one. So again Keep up the prayers and thanks very much.
    ROLL TIDE and PRAISE GOD
     
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  21. DizneeTeachR

    DizneeTeachR Virtuoso

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    Sorry I have not updated here on Ariana. I wanted to see how she was doing before the holidays.... News was not what I was hoping/praying for... Here's her mom's post....
    Posted by Jenna Farragut
    5 days ago

    People have been messaging, texting, and calling. I'm sorry. I just couldn't find the words. We all had so many prayers & hope....This is the update you have all been waiting for but never really wanted.
    We unfortunately received really terrible news last night. In just 3 months' time, Ariana has 3 new large brain tumors in 3 new locations. They are inoperable. Radiation is not an option because of previous radiation. We have one chemo option at St Jude that could possibly prolong her life, but there are no cures. We are searching to see if there are other options at other hospitals, but our number one focus will be quality of life. Please don't bombard us with opinions. Not trying to be ugly, but Lee and I will make the best possible decision for Ariana! I'm still praying for a miracle.... please understand that we want our privacy at this time as we make major decisions.... If we don't answer you right away, sorry in advance. I know there are no words. We just love you all and hope you will continue to pray with us.

    I am asking you to keep this family in your prayers. My heart just broke when I read this... I will keep praying!!! Thank you!!!
     
  22. DizneeTeachR

    DizneeTeachR Virtuoso

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    I have not updated because I put links in, but Ariana could really use some prayers. She is currently admitted to a hospital for fever... Not good when you are doing rounds/finished round of chemo. I left link so you can read update. I know her mom would love to know more prayers are coming their way!!! Thank you!!!

    https://www.gofundme.com/ArianaFarragut
     
    Last edited: Apr 1, 2017
  23. Obadiah

    Obadiah Groupie

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    I've been praying daily.
     
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  24. DizneeTeachR

    DizneeTeachR Virtuoso

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    Going to bump this. Ariana is worse tonight. They are trying to transfer her to St. Jude. Please pray she can be transferred quickly and that she can be strong enough to transfer.
     
  25. catnfiddle

    catnfiddle Moderator

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    Apr 4, 2017

    If they can get her to St. Jude, there is hope. My friend's daughter was gifted several quality years of life from their work.
     
  26. agdamity

    agdamity Fanatic

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    Sending prayers
     
  27. DizneeTeachR

    DizneeTeachR Virtuoso

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    Update... They are transferring her to St.Jude as we speak!!!Prayers for all involved with this little lady and Ariana.
     
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  28. DizneeTeachR

    DizneeTeachR Virtuoso

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    Bumping this... This little girl still needs prayers. From her go fund me page..."We are HOME for a little over a week! We still don't know what the next step is or if there will be one. Tumor board's meeting was very inconclusive, and it really depends on scans.

    We go back to St. Jude Aug 1 or 2 for appts and then MRI and LP on that Friday! THAT will determine our next step. Ariana is worn out, and rightly so. Radiation was harder on her than we anticipated, but more so, the tumors are causing her to have some issues (a lot of emotional/ behavioral stuff on top of all the pain). It is very very difficult to watch. Ariana can't control when it happens; it happens often, and she remembers after and feels bad about it. It breaks my heart.... very painful on all counts!" All the stuff they are doing now is fully out of pocket. Ariana's mom is also about 34 weeks pregnant. So I ask that you pray for Ariana, but her mom & family. Thanks.
     
  29. Obadiah

    Obadiah Groupie

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    I've been praying every day.
     
  30. DizneeTeachR

    DizneeTeachR Virtuoso

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    Awe thanks. I know her family appreciates it.
     
  31. DizneeTeachR

    DizneeTeachR Virtuoso

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    Dec 21, 2017

    Please pray for this family.... Her mom's words are truly heart wrenching. As we enjoy momenta with our families....please keep this and other families going through this or the pain of being "separated" brings this season. (I read somewhere that id you are a believer that you don't lose someone, you know where they are you are just separated... I love that.)
    From Ari's mom... FYI... You may need a tissue....


    [​IMG]
    1.0k
    Ariana's Fight Against Brain Cancer

    $54,987 of $100,000 goal

    Raised by 864 people in 37 months
    Donate Now Share on Facebook
    Update 274
    Posted by Jenna Farragut
    8 hours ago

    Share

    This is real. This is raw.

    **Please refrain from blowing up our phones. We have asked nicely. We truly need our space!**

    We are sad; we are sick; we are angry; we are scared; we are devastated... The list could go on and on. We are truly in a spot no parent should ever have to be in. Ariana’s cancer has progressed very rapidly. In just 6 short weeks she has 7 new tumors: 2 new spots in the brain, 5 large tumors in the spine. The tumor we were treating has been measured as 4 times larger than 6 weeks ago. The immunotherapy hasn’t done a thing. She’s had some issues and some pain, but we never anticipated this. No one does. Our time with her is very limited. They told us she has 4-6 weeks, maybe less, maybe more. With ATRT it’s very hard to tell. They are surprised she’s doing so “well” physically, when clinically she’s doing so poorly.... We will wrap up some things here, and then shortly after Christmas we will return home to LIVE! We are trying to make some plans... But we will let Ariana guide us.

    We haven’t told her how bad it is yet, but she knows some.... She asks a lot lot of questions. We don’t lie to her. She’s had friends before her go to heaven, and she knows there is no cancer and no pain there. I find solace in that. At just 5 she’s stronger than I’ll ever be!

    A fellow ATRT angel parent gave me the most sound advice I could’ve ever asked for. He said, “Don’t mourn her while she’s here, no matter how hard it is. You will have plenty time to do that when she’s gone.” I pray that you all can do that with us. Be strong in front of her. It’s going to be so damn hard, but she feels our pain, and she has enough of her own to bear.

    All day after results, we were just going through the motions. They took Ariana & Jameson to play while we received results and looked over scans. After, Ari wanted to go to the cafeteria to eat. I didn’t even taste the food, but I forced myself to swallow. Then she wanted to go to the children’s museum. We took them. We played all over that place for several hours. I hurt; I watched her happy; I cried. Lee cried. We didn’t let her see us. I’m sure she will see us cry, though. It’s so damn hard to know I’m losing my very best friend. A lot of people will say that about their kids, but Ari truly is my best friend, and I’m just not ready... I know no one ever is. I watched her rock her baby, and I hurt that she will never be a mother. Cancer has stolen so much from our family... I hate it with every ounce of my being.

    If you don’t know what to say, please just don’t say anything. We don’t want to hear that “God has a plan” right now. We are well aware that God has had his hand in all of this.... We are well aware that we have been blessed with 5 amazing years with the most amazing kid on Earth, but we don’t want to give her up. We know we are blessed with 2 other beautiful babies, but there will always be a void. Just pray for strength for all involved. She’s so important to so many. Most of all please pray that she doesn’t suffer. She’s suffered so much already in her short life.

    Thank you all for continuing to pray with us and for loving us. I’m sorry we don’t have good news for you. I want my Christmas miracle more than anyone. We are very happy to have Christmas just the 5 of us. Extra special. Then when we get home, we can have a big family Christmas. God bless you all, and love on your children. Tomorrow is never promised!

    #TeamAriana #SheDeservesMore
    #GodWillSeeUsThrough
    #NEEDAMIRACLENOW
     
  32. Obadiah

    Obadiah Groupie

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    I pray daily for Ariana and her family.
     
  33. DizneeTeachR

    DizneeTeachR Virtuoso

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    Mar 19, 2018

    She has been fighting. Before Xmas they only gave her 4-6 weeks. She is still here...Praise the Lord... Here's the latest update. Please continue to pray.... Her mom has put a different link to donate if you wish... Just FYI...

    [​IMG]
    1.0k
    Ariana's Fight Against Brain Cancer

    $57,505 of $100,000
    Update 283
    Posted by Jenna


    They say hold on to hope...that miracles do happen. Each day we get is a miracle if you really think about it. I was hesitant to share this news bc we have lost several friends lately who were fighting cancer, and we also have several friends who aren’t doing so well. My heart is heavy for them....Then I thought about how much the GOOD matters to me. I am so uplifted when I hear others are doing well; my hope grows like wildfire. That made my decision easy.

    Long story, short, we are headed back to St. Jude in Memphis!!

    It has been a little over a month in the works, and things are finally working out. A BRAND new trial for progressed ATRT is opening up. Ariana’s tumors were tested to see if she qualifies, and we found out just a couple days ago that she did! Lee and I tossed the idea back and forth. It’s such a HUGE decision, and we didn’t want to make the “wrong” decision, for Ariana’s sake. We discussed it with Ariana, and she said she wasn’t ready to quit fighting. That made our decision much easier. We signed consent, and things moved very quickly! We leave TUESDAY for scans and pre work up which will be done Thurs/Fri at St. Jude. The trial will likely open the following week (26-30). That is still in the works!

    This trial is a BIG difference in a lot of aspects.

    1. It’s 2 small pills that she has to swallow whole with ONLY water. She’s never been able to take pills. (She and I have been practicing with mini M and Ms and tic tacs, but this concept is difficult. She keeps chewing. She is determined though, and I’d say that’s half the battle).

    2.We will only have to live at St. Jude for 4 weeks.

    3.Each round is 2 pills once a day for 14 days.

    4. We know about side effects for 1 drug, but the other is unknown. That’s why we must live in Memphis for a month. We don’t know where we will be housed yet bc they can’t put housing in until we start the trial, so it will be some hotel living for a week or so.

    Ariana has been feeling well for the most part with only pain now and then. We rarely have to give pain meds. In the past 2 days though, we’ve noticed that her right eye is starting to wander. Our onco believes that the tumors are starting to press on her optical nerves. With hope and prayers (and some new drugs), maybe we can get her tumors to shrink or become stable & save her sight in the process.

    I ask that you all continue to pray for our family. We have to jump with the new trial and see where it takes us. If we feel or Ariana feels that the bad outweighs the good, we can quit and come home. That gives me some peace. We have and will always have Ariana’s quality of life as our best interest.

    I hate that we will spend another holiday away from home; however, we don’t want to live with the “what-if” monster. This could be our big break! We left St. Jude on a Tuesday with 4-6 weeks. We will head back to St. Jude on a Tuesday, 13 weeks later. THAT is a miracle in itself. God’s not finished with you yet, baby girl. Ariana is so so brave, and we are more than proud of her strength, faith, and will.

    #TeamAriana #WeFight #WePray
    [​IMG]
     
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  34. Upsadaisy

    Upsadaisy Moderator

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    Precious child. I am praying.
     
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  35. dgpiaffeteach

    dgpiaffeteach Aficionado

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    That made me cry. Sending many prayers to them that this trial goes well
     
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  36. DizneeTeachR

    DizneeTeachR Virtuoso

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    Mar 20, 2018

    I know... Me too!! Her mom has been very open about what has been happening. If you haven't read some of her previous posts you should. But grab a box of tissues.
     
  37. DizneeTeachR

    DizneeTeachR Virtuoso

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    May 14, 2018

    I wanted to Thank everyone for their prayers for Ariana...we now need to pray for her family. Ariana earned her angel wings on Saturday. If you click on gofundme link in previous posts it will take you there. Thanks again!
     
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