My cardiologist called tonight - apparently the hospital cardiologist didn't call him last night even though he left his phone number with the ER admission nurse, who wrote down the phone number. Had quite a bit of nausea from the prednisone today, but I took the Zofran about an hour afterwards when I began to feel the nausea start - took it over 10 hours ago, nausea is gone. Zofran is great.
So, I just read this whole thread and my prayers and best wishes are being sent to you. Glad that the Zofran made you feel better. Hang in there and keep your head up. Much of cancer treatment begins with having a positive attitude. You also have your youth going for you that most other patients with this illness does not have.
Yeah, going to call the nurse who deals with chemo ffor my oncologist tomorrow - going to update her on the ER visit, see if she needs the records, and report some symptoms
Eh, it's one way to do something mentally stimulating while dealing with fatigue - my other method is I downloaded a bunch of old video games (NES, SNES era), where the games were actually difficult, and playing a bunch of those role-playing games. Haven't been able to play much due to fatigue, but it is helping me keep my mind sharp. I'm also posting updates on my progress on my blog at www.IGotCancer.net
I decided to purchase a new tablet with some Amazon.com gift cards I had lying around + some SSI money I needed to spend. Should be useful for both keeping me entertained while I am stuck on the couch, and then when I get a job.
The new tablet is rather good - one comment for anyone purchasing one - make sure that if you are using it on your lap, either put a nice big pillow on your lap, or get a good case for it, as the keyboard cover is quite painful when pressing into your fleshybits (aka my bladder/lap area, get your minds out the gutter!)
oncologist prescribed a new antacid today - one that is solely an antacid. Told me to preserve the Zofran for really bad nausea days as I only have two left because insurance is evil
Hahahaha I was resting it on my bladder region. And fleshybits is just a really fun thing to type. Fatigue makes everything seem funny
Today was a day where I did not feel well from the second I woke up. Had no fever, so no reason to call the oncologist. I think it was the chemo meds that I take every thursday kicking in. Here's to feeling better tomorrow.
haha I got a chuckle from that post. Not obscene in the least and people don't have to read your thread if they don't want to
I get weaned off the prednisone at the end of the month to make sure my adrenal glands don't get damaged. Haven't been told how long the methotrexate will last - from what I have seen in journal articles by Thomas Loughran, the guy who discovered it - it can last 6-12 months, if it is determined to be working
How are you doing, bros? I haven't been commenting, but kept you in my thoughts and prayers. We haven't heard from you in a couple of days.
Doing okay. Been forcing myself to eat, haven't been very hungry - so i've been snacking on things throughout the day. I take my fourth (i think) dose of methotrexate tomorrow. I might go to a family party this weekend at my aunt's house. I can nap in the car if I get sleepy (Or one of my cousin's old bedrooms if I get tired there).
Feeling less tired today. Had a slice of white pizza for dinner and tried eating some pepperoni on it. Might've been a bit too spicy adventurous - I can feel a little tiny bit of reflux, which is starting to subside.
Tomorrow I see the NYC oncologist. Hopefully he weans me off my daily med, which has the worst taste ever. At least Biaxin (a really strong antibiotic with a fake banana taste on the pill) tries to make itself taste decent. Have to get up at 7:30 tomorrow morning to eat breakfast (45 mins-1 hour after I get up), take the pill 30 minutes after that, then my parents and I head into NYC. Yay. Time to go to bed.
Oh yeah, saw the NYC oncologist on Wednesday. He liked my numbers - Neutrophil Count has gone from 200 to 500 and he liked that my other numbers are either going up or staying steady. He has started to wean me off the prednisone.
So, some updates. NYC oncologist would like my numbers to be better, he might change my course of treatment either at the next visit (September 9th) or after my next bone marrow biopsy (End of November or Early December, the latter being more likely). Went to local oncologist on Thursday, the nurse practitioner I saw liked my numbers (My oncologist was out of town this week) - only lost one pound, but I haven't had to use the laxatives in a week or so and that might be the cause of me losing a pound. I see the local oncologist on the 2nd and the NYC oncologist on the 9th. very tired today, got a bit of a second wind after I took a nap from 2-5:15 PM today and wasn't starting to feel sleepy until now (1 AM) so now I am going to sleep and just sleep for the next 11 hours, like I have been doing lately. Hopefully I will feel better in the morning, fridays are never a good day for me.
Have you tried drinking Ensure? There are several formulations and flavors, but they might help you maintain your weight. The chocolate Ensure was my late husband's favorite. Premier Protein shakes are another brand I've heard of people using. I don't know how much you are into alternative options, but someone in my online cancer group is drinking alkaline water since she can't do an alkaline diet due to stomach issues. I've seen jugs of it in my local stores. It is quite a bit more expensive than regular bottled water.
