Medical stuff is fun!

Discussion in 'Teacher Time Out' started by bros, Apr 11, 2015.

  1. linswin23

    linswin23 Cohort

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    Apr 19, 2015

    Bros, positive thoughts your way. Hang in there.
     
    Last edited: Apr 19, 2015
  2. bros

    bros Phenom

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    Apr 20, 2015

    feeling a bit better today

    hip still hurts - changed hip bandage, had some leakage, not too much, though.
     
  3. czacza

    czacza Multitudinous

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    Any word on all the tests?
     
  4. bros

    bros Phenom

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    Apr 20, 2015

    nothing on bone marrow.

    also I have a temp of 100.7

    If it hits 101, I have to go back to the hospital.

    I really don't want to have to do that.
     
  5. a2z

    a2z Virtuoso

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    I hope you feel better soon, bros.
     
  6. TeacherNY

    TeacherNY Maven

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    Apr 21, 2015

    Wow, you can't catch a break. Is this reaction normal after the test or did you just have a bad reaction? Hope you are back on your feet soon!
     
  7. bros

    bros Phenom

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    Apr 21, 2015

    My temp is back down to around 97.3. Yay.

    It is not related to the bone marrow biopsy. They believe I am immuno-suppressed because the neutrophils are so low - maybe because the NK cell/lymphocyte counts are so high
     
  8. bros

    bros Phenom

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    Apr 21, 2015

    Hematologist/Onccologist just called my mom on her cell phone - he reviewed blood slides from the hospital and my blood is completely different than it was even two days before going to the ER.

    So now instead of a disorder that can lead to leukemia, he is thinking I have a type of Lymphoma that is currently untyped/not much is known about/is very rare. He is thinking i'll have to see the leading expert in Lymphoma's - he's at Memorial Sloan Kettering in NY.

    So at least this guy is closer :p
     
  9. MrsC

    MrsC Multitudinous

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    Apr 21, 2015

    Hugs, bros.
     
  10. TeacherNY

    TeacherNY Maven

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    I know someone who's son just had a bone marrow transplant. It went well. He was at Sloan Kettering and they were great.
     
  11. czacza

    czacza Multitudinous

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    Apr 21, 2015

    Sloan Kettering is a great hospital, bros. Just curious. You are an adult. Why didn't the doctor call YOU?
     
  12. chemteach55

    chemteach55 Connoisseur

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    Apr 21, 2015

    My thought exactly--I can barely make a doctor's appointment for my 21 year old son.
     
  13. bros

    bros Phenom

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    I think he read the wrong number on my patient info sheet - he has both of my parent's cell phones, my phone, and the house phone, and he has permission to talk about everything with my parents. Going to ask him tomorrow to call the home phone first in the future.

    And my mom can actually write notes when someone calls - I can't really, on my tablet lying on the couch
     
  14. bros

    bros Phenom

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    Apr 22, 2015

    back from the doctor.

    I am a diagnostic question mark, apparently.

    Those LGLs? Gone. Might've just changed size, though.

    Now instead of NK Cells, there's a lot of T Cells, but they don't look exactly like T Cells.

    At this point, he is thinking one of these:
    1. Lyphoma - Not a typical kind. My marrow shows signs of Hodgkins Lymphoma, Non-hogdkins lymphoma, and some unknown type of lymphoma
    2. Some Lymphoproliferative disorder
    3. NK Cell LGL DIsorder that can develop into NK Cell LGL Leukemia.

    He's sending my blood off for chromosomal and genetic testing, results should take a week or two. I see him next week.
     
  15. a2z

    a2z Virtuoso

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    Apr 22, 2015

    Thanks for the update. I'm so sorry you have to go through this. A diagnosis isn't always pleasant, but not knowing is even harder.
     
  16. Special-t

    Special-t Enthusiast

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    Apr 22, 2015

    How do you feel? Hope you don't feel too weak or sick. Take care..
     
  17. bros

    bros Phenom

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    Apr 23, 2015

    I feel fine - hip is still a bit achy. If I felt sick, things would be moving much, much quicker.

    Also my doctor said today I can go out again, but avoid places where there might be sick people, such as schools. If I go out to eat, wipe down the utensils first with cleaning wipes
     
  18. linswin23

    linswin23 Cohort

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    Apr 23, 2015

    Bros, all the best for you. Keep us updated.
     
  19. Special-t

    Special-t Enthusiast

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    Apr 23, 2015

    Maybe you will end up teaching online classes to stay clear of germs!
     
  20. bros

    bros Phenom

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    Apr 25, 2015

    Hip is still slightly achy, but at least I can walk around without wanting to scream in pain like last week.
     
  21. bros

    bros Phenom

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    Hip is still a bit achy, but went out to dinner last night, so I was sitting up for a while. Probably not the best idea, but the food was tasty.
     
  22. czacza

    czacza Multitudinous

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    Apr 26, 2015

    So when you went out, did you avoid the above? I know germ phobes who are a bit over vigilant in wiping things down, no lemons in drinks kind of people.....considering your history here doesn't document many evenings out for dinner was this the best choice?
     
  23. bros

    bros Phenom

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    Apr 27, 2015

    I go out for dinner every few months.

    We got to the restaurant right when they opened - so not many people - and we wiped down the already immaculate looking utensils. (It was a very... fancy restaurant participating in Jersey Shore Restaurant Week)

    We also chceked with my hematologist/oncologist on wednesday asking him specifically about going out to eat at a restaurant and he was fine with it. He said it is much more likely that a bacteria inside my body infects me than something from an external source, unless I am near someone who is sick.

    I didn't go to the wake/service for my uncle's father (he's married to my aunt down in Cherry Hill) which was on Saturday - they all understood. But I know I cannot use this as a excuse to withdraw completely. I am going to see my therapist this week, bt we have told him if he feels ill or his infant feels ill, call us, then we can do a phone session.
     
  24. bros

    bros Phenom

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    Apr 28, 2015

    Seeing the neurologist and the oncologist tomorrow
     
  25. Special-t

    Special-t Enthusiast

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    Let us know how it goes.
     
  26. bros

    bros Phenom

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    Apr 29, 2015

    Hematologist/oncologist just called - he just got the slides from my bone marrow biopsy today and since I am not feeling any different, he would rather go to the hospital and review my slides and see me either later this week or next week - he should call tomorrow with results.
     
  27. bros

    bros Phenom

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    His office just called. He wants to see me tomorrow.
     
  28. bros

    bros Phenom

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    Apr 29, 2015

    Neurologist appointment was quick. He took me off the Depakote effective immediately and now I am trying out Vimpat.
     
  29. bros

    bros Phenom

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    back from the oncologist - he is thinking it is a T-Cell LGL Lymphoproliferative disorder (which can include lymphomas & leukemias) - he wants me to see a guy in NYC next week
     
  30. bros

    bros Phenom

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    Went to my GP. He also finds this incredibly interesting and wants to be kept in the loop. He says another possibility for treatment could be stem cells.
     
  31. linswin23

    linswin23 Cohort

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    May 3, 2015

    Wow, bros. Hope you are feeling better.
     
  32. bros

    bros Phenom

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    Still trying to schedule an appointment at Columbia University Medical Center.
     
  33. bros

    bros Phenom

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    Got an appointment to see the specialist - heading to NYC on wednesday
     
  34. linswin23

    linswin23 Cohort

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    May 4, 2015

    Glad to hear. Hope you get more answers.
     
  35. bros

    bros Phenom

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    May 6, 2015

    surprise bone marrow biopsies with only lidocaine to numb the pain sucks. saw the expert today.
     
  36. MrsC

    MrsC Multitudinous

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    Hopefully you are able to get some answers soon, bros.
     
  37. bros

    bros Phenom

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    he's thinking it is NK Cell Lymphoma or Leukemia, but he needs to check my blood to see exactly what type it is - as that determines course of treatment

    There will be no watching and waiting - he wants to start chemotherapy as soon as possible, oral chemotherapy.
     
  38. Caesar753

    Caesar753 Multitudinous

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    I'm sorry to hear this diagnosis. I'm glad that your doctor is being proactive. I hope that things work out well for you.
     
  39. a2z

    a2z Virtuoso

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    Caesar said what I was thinking.

    Prayers for you, bros.
     
  40. MrsC

    MrsC Multitudinous

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    May 7, 2015

    Prayers, bros. Hope that a quick start to treatment brings positive results.
     

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