Medical stuff is fun!

Discussion in 'Teacher Time Out' started by bros, Apr 11, 2015.

  1. bros

    bros Phenom

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    Apr 11, 2015

    So when I went to the neurologist at the end of January, he ordered a run of the mill blood test to make sure my liver levels are fine and my medication levels are fine.

    So I got the bloodwork done at the beginning of March, like two weeks after being sick. Had some abnormal levels, but it was my first time using the lab company (never going back there again, they were rather bad at their jobs). So March 28th, went to a nearby hospital and got my blood drawn there. Had abnormal levels again, some further increased. So my neurologist had me lower one of my seizure medications (Depakote ER from x2 daily to x1 daily).

    And my GP told me to see a hematologist/oncologist. Which I did on Tuesday. At that time, he said it could range from anything from a vitamin deficiency, to some more severe things, like cancer, but not to worry, as I am not showing symptoms of much of anything, so I am relatively well off. So he scheduled a followup for this coming Wednesday, and said he wouldn't call unless something needed action sooner.

    So he called today. He saw things under the microscope "that he never expected to see."

    Surprisingly, no vitamin deficiencies or abnormalities - all of that is normal.

    I have a really high count of Lymphocytes - a term used as an umbrella term for the three types of White Blood Cells. I also have an extremely high amount of a specific type of white blood cell, the type of which is exceedingly rare in general, and even rarer in someone as young as me.

    So now on Sunday, I get to get an ultrasound of my spleen & liver. Then on Wednesday, I get to have a bone marrow biopsy/extraction/aspiration/whatever it is called.

    And now the diagnosis can range from something easily treatable (though I think that is less likely at this point), to an incredibly rare disease/disorder that only a handful of doctors in the US know how to treat.

    Yay. Medical stuff. I was sort of hoping for a vitamin deficiency, but I knew in the back of my mind it wouldn't be that simple a solution with my medical history.
     
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  3. Missy

    Missy Aficionado

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    Apr 11, 2015

    I'm sorry. Hoping for the best for you.
     
  4. DizneeTeachR

    DizneeTeachR Virtuoso

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    Oh geesh. Doesn't sound like fun at all.
     
  5. kpa1b2

    kpa1b2 Aficionado

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    Good luck! Experience has taught me to use the same labs for all blood draws.
     
  6. agdamity

    agdamity Fanatic

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    So sorry you're dealing with this. Hoping for the best outcome.
     
  7. dgpiaffeteach

    dgpiaffeteach Aficionado

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    So sorry, bros.
     
  8. bros

    bros Phenom

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    I was forced to use the lab I did not like at all because my insurance decided to switch to them for their preferred lab.

    So now I am just going to go to one of the local hospitals.

    And my new hematologist can do basic blood tests there on premises, then send it out to a lab that does all sorts of fancy tests.

    It'll be interesting. If it is the thing that only a handful of doctors in the country know how to treat - he mentioned that one of the closer ones is in Virginia.
     
  9. MrsC

    MrsC Multitudinous

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    Keeping you in my thoughts, bros.
     
  10. Special-t

    Special-t Enthusiast

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    Apr 12, 2015

    Let us know how it goes.
     
  11. bros

    bros Phenom

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    Apr 12, 2015

    And i'm awake to head to the ultrasound in under an hour.
     
  12. Special-t

    Special-t Enthusiast

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    Hope you get your results quickly so you dont have to wait and wonder.
     
  13. bros

    bros Phenom

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    And we're back. Going to get results in a few days. My dad looked at the ultrasound while it was being done - he thought everything looked normalish (but he has no medical training) - other than my kidneys, which we already knew were weird.
     
  14. Ms. I

    Ms. I Maven

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    Hope all results are negative (for whatever issue it is).
     
  15. bros

    bros Phenom

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    Not having an enlarged liver and/or spleen would be a good sign - that usually is indicative of cancer.

    Bone marrow will be more explanatory

    and painful.
     
  16. czacza

    czacza Multitudinous

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    Wishing you the best, bros.:angel:
     
  17. bros

    bros Phenom

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    Apr 13, 2015

    Eh, just more medical fun.

    Should probably take a break from the job search for the near future, though.
     
  18. linswin23

    linswin23 Cohort

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    I hope it goes well for you.
     
  19. chemteach55

    chemteach55 Connoisseur

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    Apr 13, 2015

    Why??? Don't be so negative about the medical tests. I am on several epilepsy meds also and my tests come back abnormal quite often. Everything is probably ok and you will still need a job. Keep up the search--this is hiring season for next year!!
     
  20. bros

    bros Phenom

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    The liver levels have already lowered quite a bit, when I was tested last Tuesday, a week after the lowering of the depakote, they were about 30 points lower than they were on the 28th of March - and only 20 points away from normal liver levels.

    The hematologist/oncologist does not think all of this abnormal blood work could be caused by Depakote ER. The Depakote could be raising the liver levels, but it wouldn't cause a full immune system response like what is happening in my blood.
     
  21. bros

    bros Phenom

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    My dad talked to the woman who performs the bone marrow biospy. She's going to get the doctor to prescribe some percocet for me to take before I leave for the appointment.
     
  22. Special-t

    Special-t Enthusiast

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    Good idea!
     
  23. bros

    bros Phenom

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    Apr 14, 2015

    Yeah. Won't mask the pain of marrow being extracted from my hip bone, but I will definitely care less about it - especially if I am given more than one percocet.
     
  24. bros

    bros Phenom

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    Apr 15, 2015

    And I have 5 percocets.

    Two (Each one is 5/325 mg) will be taken before the appointment.

    I will also use numbing cream (Emla aka Prilocaine/Lidocaine cream) on my hip area before leaving for the appointment.

    So will certainly not care as much about the needle going into my hip bone as I would without the percocet.
     
  25. MrsC

    MrsC Multitudinous

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    Hope all goes smoothly today, bros.

    (After having my gall bladder out, I was given a prescription for Percocet. I took one, then returned the rest to the pharmacy; I hated how disconnected they made me feel.)
     
  26. TeacherNY

    TeacherNY Maven

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    Apr 15, 2015

    I took them once after I had surgery and they didn't really help with any pain. Hope they help you!
     
  27. bros

    bros Phenom

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    Apr 15, 2015

    Disconnection would be excellent at this point. The point is that I won't really care about/notice my hip.

    Eh, vicodin helped me when I had my wisdom teeth out.
     
  28. ms.irene

    ms.irene Connoisseur

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    Apr 15, 2015

    I'm so sorry to hear you're going through this, bros. I would be a nervous wreck going into something like this. Hang in there!
     
  29. bros

    bros Phenom

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    The bone marrow biopsy was *incredibly* painful.

    Took about 45 minutes.

    Didn't care about the pain until they had to get a core sample (Which I think is an actual chunk of marrow, fresh out of the bone)

    Holy hell that hurt.

    So the doctor said that based on the blood test, I most likely have a disorder that only about 10 people get diagnosed with a year in the US.

    And my hematologist/oncologist has never heard of someone being diagnosed with it at 24 years old - it's usually diagnosed in people age 50-60.

    Asian men who are 50-60.

    I am not of Asian descent - not a lick of it in me.

    Most likely, i'm going to have to go to the world expert on the disorder (he helped discover it in 1985) who is at the University of Virginia's Cancer Center.

    We're thinking we'll fly down to Richmond, rent a car, and drive there.

    We'll stay overnight - maybe visit something cool like Monticello.
     
  30. bros

    bros Phenom

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    Apr 16, 2015

    and i'm awake

    my hip hurts
     
  31. teacherintexas

    teacherintexas Maven

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    Bone pain is very painful. I hope you feel better soon.
     
  32. czacza

    czacza Multitudinous

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    not surprising. :(. When do you get results?
     
  33. Special-t

    Special-t Enthusiast

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    Sounds really uncomfortable. Nothing worse than not sleeping due to pain.
     
  34. bros

    bros Phenom

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    Apr 16, 2015

    Monday or Tuesday.

    According to my brother, I was pretty much just saying "ow. ow. ow." the entire time I was sleeping after the percocet wore off.

    For the past hour or so my feet were swollen and my calf muscles *really* tense.

    elevated them. Less swollen now. Might call doctor tomorrow about it.
     
  35. bros

    bros Phenom

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    Admitted to hospital, swollen feet and ankles also feet were purple earlier. Can't sleep.
     
  36. MrsC

    MrsC Multitudinous

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    Hope all is okay, bros.
     
  37. webmistress

    webmistress Devotee

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    I'm so sorry you're going through all of this :(
     
  38. bros

    bros Phenom

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    Had seizure at like 10 am
     
  39. czacza

    czacza Multitudinous

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    Are you still in hospital?
     
  40. Missy

    Missy Aficionado

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    Apr 19, 2015

    Hope you are feeling better soon and get some relief.
     
  41. bros

    bros Phenom

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    Apr 19, 2015

    Yes, I was.

    Out now. Not allowed outside or near people who feel sick. Yay.
     

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