Marfin's Disease

Discussion in 'Teacher Time Out' started by Peachyness, Mar 4, 2009.

  1. Peachyness

    Peachyness Virtuoso

    Joined:
    Jul 14, 2006
    Messages:
    6,181
    Likes Received:
    1

    Mar 4, 2009

    My brother's doctor told him that he may have Marfin's Disease. Unfortunately, my brother doesn't have health insurance and is too old to qualify for medical, and too poor to afford anything. He's still in college. I'm super worried about him as he is always complaining of chest pains and his ekg's are not normal. But, no one is doing anything. I'm super worried and frustrated.

    Anyways, does anyone know of someone who has Marfin's disease? Is it life threatening? I'm too afraid to look it up as I always start to freak out.
     
  2.  
  3. TennisPlayer

    TennisPlayer Cohort

    Joined:
    Jul 11, 2008
    Messages:
    518
    Likes Received:
    0

    Mar 4, 2009

    There should be a community health center in his area and they have sliding health fee scales so you can get the help you need and pay what you can afford. That's what I did in college when I didn't have health ins. and very little money.

    Or check with a local hospital and ask about their sliding fee schedule or how they help people who don't have insurance that may need treatment.

    He should definately be told what to do to manage his health. I looked up Marfan syndrome online.
     
  4. Teaching Grace

    Teaching Grace Connoisseur

    Joined:
    Sep 21, 2005
    Messages:
    1,731
    Likes Received:
    3

    Mar 4, 2009

  5. TeacherSandra

    TeacherSandra Enthusiast

    Joined:
    Oct 29, 2006
    Messages:
    2,305
    Likes Received:
    0

    Mar 4, 2009

    Peachy, I have never heard of Marfin's Disease, but my prayers go out to your brother and family.
    Bless you.
     
  6. czacza

    czacza Multitudinous

    Joined:
    Sep 30, 2001
    Messages:
    24,958
    Likes Received:
    2,115

    Mar 4, 2009

  7. Blue

    Blue Aficionado

    Joined:
    Nov 16, 2005
    Messages:
    3,591
    Likes Received:
    3

    Mar 5, 2009

    I have a nephew with Marfan. He lives in Europe, and seems to be fine, with bouts of pain.
     
  8. sue35

    sue35 Habitué

    Joined:
    Aug 2, 2007
    Messages:
    897
    Likes Received:
    0

    Mar 5, 2009

    If he is too poor and doesn't have insurance wouldn't he qualify for Medicaid?
     
  9. catnfiddle

    catnfiddle Moderator

    Joined:
    May 8, 2008
    Messages:
    8,476
    Likes Received:
    1,607

    Mar 5, 2009

    One of my best friends from high school had a major case of Marfan Syndrome. The man was 7'1" by the time we were 16, but he was extremely brittle. Keep a close check on your brother's heart condition, since one of the possible side complications seems to be a weak aorta.

    The GOOD news is that the National Marfan Foundation is looking for volunteer patients, so he could get some treatment for free. Have him check http://www.marfan.org/nmf/GetContentRequestHandler.do?menu_item_id=49

    He (and you) will definitely stay in my thoughts.
     
  10. blazer

    blazer Connoisseur

    Joined:
    Feb 18, 2009
    Messages:
    1,668
    Likes Received:
    384

    Mar 5, 2009

    How old is your brother? I have taught several children with Marfan's syndrome. Symptoms include elongated limbs and joints and weak blood vessels. The girls all managed to get throuigh school without too much trouble and took part in everything. One of them is now a mother and had a natural birth.
     
  11. Ms. I

    Ms. I Maven

    Joined:
    May 13, 2004
    Messages:
    5,874
    Likes Received:
    158

    Mar 5, 2009

    I've never heard of it, but I hope your brother gets the help he needs!
     
  12. Ross

    Ross Comrade

    Joined:
    Oct 28, 2008
    Messages:
    353
    Likes Received:
    0

    Mar 5, 2009

    Part of your research should include looking up Dr. Donald Nuss of the Childrens Hospital of the Kings Daughters in Norfolk, Virginia. Although your brother may be to old to be a patient of Dr. Nuss, perhaps his office can guide you to the best care in this country.
     

Share This Page

Members Online Now

  1. Caroline James
Total: 254 (members: 2, guests: 229, robots: 23)
test