Friend's Baby doesn't have much time

Discussion in 'Prayer Request Forum' started by scienceteach82, Apr 4, 2008.

  1. scienceteach82

    scienceteach82 Cohort

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    Apr 4, 2008

    Her note:

    just wanted to let everyone know that little Ava was born March 25th at 6:51pm by c section. She weighed 4 lbs 13 oz. She is very tiny and very cute and we love her so much.

    Tragically, Ava was diagnosed with a heart defect and Trisomy-18, or Edwards Syndrome, which is a rare genetic disorder that is fatal, and its victims typically only live a few days. Very few people even know about this disease and there is no cure... there is no way to prevent it... and 1 in up to 8,000 babies suffer from this rare disease: http://www.trisomy18.org.

    Patrick and I are praying now for time with Ava. The hospital decided that her quality of life was most important now, so they have taken her off her monitors and sent us home. We have a hospice nurse that will be coming to out to check her every day.

    We ask for prayers of time.


    I am so heart-broken for her! She was so looking forward to becoming a mom, and spending many years with her Ava. Please pray for her, and her family.
    I can't even imagine what she is going through.

    Thank you.

    cj
     
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  3. kburen

    kburen Cohort

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    I'm so sorry to hear this! I will keep the family and Ava in my prayers that it is not painful for her and that her parents can enjoy the little time that they have with their little angel.
     
  4. jw13

    jw13 Groupie

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    I am so sorry to hear about your friends baby. Ava:angel: and her family will be in my prayers.

    I had just read this article on MSN a couple of weeks ago. It was very touching about pediatric hospice.
    http://www.msnbc.msn.com/id/23682263
     
  5. smalltowngal

    smalltowngal Multitudinous

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    Ava and her parents are in my thoughts and prayers. I pray that they can enjoy this time with their baby.
     
  6. scienceteach82

    scienceteach82 Cohort

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    Thank you everyone.
     
  7. MissFrizzle

    MissFrizzle Virtuoso

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    I am so sorry.


    There is a fantastic resource for grieving family...


    The Rowan Tree Foundation

    Please tell the family- there are many parent's who have lost a child to this and the Rowan Tree Foundation is a good place to get support.

    God Bless
     
  8. MissFrizzle

    MissFrizzle Virtuoso

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  9. scienceteach82

    scienceteach82 Cohort

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    Thanks. I will pass that along to her.
     
  10. Proud2BATeacher

    Proud2BATeacher Phenom

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    Ava, her mommy and daddy will be in my prayers.
     
  11. 1gdteach

    1gdteach Companion

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    They will also be in my prayers. I am so sorry...
     
  12. sub&mom

    sub&mom Companion

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    This is so sad. I'm very sorry. They will certainly be in my prayers.
     
  13. Rabbitt

    Rabbitt Connoisseur

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    How sad. They are all in my prayers.
     
  14. DizneeTeachR

    DizneeTeachR Virtuoso

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    Prayers for Ava as she makes her trip to be an angel. Prayers for Ava's Mommy & Daddy to be strong in the days, weeks, years that lie ahead of them without their sweet Ava here on Earth, but a special guardian angel watching & blessing them in the future!!!
     
  15. SwOcean Gal

    SwOcean Gal Devotee

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    How sad. I will be praying for mom and dad to have the strength to carry on. Lots of prayers for the family.
     
  16. scienceteach82

    scienceteach82 Cohort

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    Thank you again for the thoughts and prayers. I will update when any information becomes available.
     
  17. ecross1983

    ecross1983 Rookie

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    What a sad situation. Prayers going up for them.
     
  18. scienceteach82

    scienceteach82 Cohort

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    From Lauren:

    *I am sad to announce that our sweet baby Ava peacefully passed away in her daddy's arms Saturday April 5th 2008 at 1:52am. She was beautiful and we love her and miss hear dearly.
     
  19. Upsadaisy

    Upsadaisy Moderator

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    God rest her soul.
     
  20. scienceteach82

    scienceteach82 Cohort

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    Thank you so much for posting that. I sent it to her, and she said she visited the site. She said it looked wonderful.
     
  21. smalltowngal

    smalltowngal Multitudinous

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    scienceteach, I'm sorry to hear about Ava's passing. May her parents always remember the precious moments they shared with their little angel.
     
  22. desroche85

    desroche85 New Member

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    Many prayers and good thoughts to little Ava and her family.
     
  23. Hoot Owl

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    I'm so heartbroken for this family, Losing a child is one of the biggest disappointments in the world.

    They're in my prayers.
     
  24. MissFrizzle

    MissFrizzle Virtuoso

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    I know these parents must have unbearable grief.... may they know they are not alone. May they find comfort sharing their grief with others.

    God Bless
     

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